Fenland’s blood donors recognised for saving countless lives at special ceremony

Left to right back row: Marion Batt, Geoffrey Clarke, Roger Collins, Craig Ramshaw, Judith Crawford, Alexander Rae. Left to right front row: John Rice, Janet Stocking, Archie Ramshaw, Keith Taylor, Andrew Trundle.

http://www.wisbechstandard.co.uk/news/fenland_s_blood_donors_recognised_for_saving_countless_lives_at_special_ceremony_1_3081584

  • For further information about this award event please contact Georgina Norris, Donor Relations Co ordinator on 01223 588717 or email georgina.norris@nhsbt.nhs.uk
  • For general press office enquiries about NHS Blood and Transplant and its other services please contact 01923 367600 or email pressoffice@nhsbt.nhs.uk
  • For out of hours enquiries please call 0117 969 2444.
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National Christmas appeal in the Sun newspaper to save lives…

Archie Ramshaw, Lexie Wallace, Emma Paine, Michael Nasher and Roger Moore all join together to raise awareness of giving blood at Christmas in the Sun newspaper.

http://www.thesun.co.uk/sol/homepage/woman/health/health/5300408/give-blood-and-nine-minutes-of-your-time-could-save-lives.html

Give something amazing this Christmas, visit http://www.blood.co.uk

Archie joins forces with NHS Blood and Transplant

 

Archie joins forces with NHS Blood and Transplant to raise the campaign to give blood. Archie’s story is now available at http://www.blood.co.uk/amazing-stories/archie-ramshaw

Huge thanks to donors at Norwich City Football Club…

Archie joined 124 blood donors from across Norfolk, Suffolk and Lincolnshire to say a huge thank you for their commitment after donating over 9800 units of blood to save the lives of so many.

Huge thanks to donors at Norwich City Football Club…

The Award Ceremony was held at Norwich City Football Club on the 7th November.  Blood donor sessions have been held at Carrow Road since September 2010, collecting over 6700 units of blood. The day started with a personal guided tour of the football ground, soaking up the history of the club which formed in 1902.  Shortly after the tour Archie had the opportunity to meet up with all of the donors receiving awards during the reception.  After lunch, Archie presented each of the donors with a crystal award for their long standing commitment to donating whole blood. Each of the donors received an award for 75 (Emerald) blood donations or 100 (Diamond) blood donations. Overall the day was a great success and emotional to see so many hero’s in one room.

For more information on the Donor Award Scheme visit http://www.blood.co.uk/donor-information/donor-award-scheme/whole-blood-donor/

A huge thank you for caring for Archie

A huge thank you for caring for Archie

 

Archie presented a Cheque for £6500 to Rudham ward manager, Sister Debbie Shales. The money will go towards improving facilities upon the Rudham Ward.

With the help of so many sponsors we’ve managed to raise over £6500 which is absolutely fantastic and has far exceeded our expectations. We are all very grateful for your kind donation. Archie Ramshaw  is pictured above presenting a cheque to Rudham Wards  Sister Debbie Shales whilst he was admitted to the ward having a routine  Blood Transfusion in October.

Rudham ward including the Doctors, Nurses and Play Specialists have been Archie’s lifeline for the last few years and will continue to be so for Archie and many other children in the future. This will go a long way to improve the children’s experience whilst they are visiting Rudham Ward.

Runners inspired by brave Archie, 10, from King’s Lynn

The Norman CofE Primary School Northwold encouraged children to become involved in designing a logo for 6 to be printed on to the running vests of local runners taking part in the London Royal Parks Half Marathon. Charity Run in aid of the Rudham Ward at the Queen Elizabeth Hospital. Toby Rickard (7) (left) he is holding one of the shirts with Archie Ramshaw (10) (right) Also in pic Runners left to right, Ian and Sarah Hales and Theresa and Craig Ramshaw. School Headteacher Carole Reich (back far right)

Runners who were inspired to take part in a charity run by a young patient at Lynn’s Queen Elizabeth Hospital are overwhelmed after raising more than £6,000.

The Rudham Runners took part in the Royal Parks Foundation Half Marathon in London on Sunday 6th October to say thanks to the hospital’s Rudham Ward for the care it gives to Northwold youngster Archie Ramshaw.

The 10-year-old suffers with the rare blood disorder, Congenital Sideroblastic Anaemia, and has to endure regular blood transfusions and iron cleansing treatments.

His mum and dad, Theresa and Craig Ramshaw, wanted to raise money for the ward and teamed up with friends Ian and Sarah Hales and Jade and John Gooch as the Rudham Runners to complete the half marathon.

Mr Ramshaw said: “I felt a mixture of emotions whilst running. It was a startling reminder of just how many other people’s lives are affected by illnesses. Yet you could see the sheer determination shine through all of them.” The team wore T-shirts designed by pupil Toby Rickard, seven, who won a design competition at Northwold Primary School, where Archie attends.

Mr Ramshaw said: “We are completely overwhelmed by the support from the local community. We can’t thank everyone enough.”

http://www.lynnnews.co.uk/news/local/latest-local-news/runners-inspired-by-brave-archie-10-from-king-s-lynn-1-5572809

Running for Rudham…

After many months of training, Craig , Ian, John, Jade, Sarah & Theresa all took part in the London Royal Parks Half Marathon, to raise money for the Children s Rudham Ward in Kings
Charitable Fund-01-01Lynn. The Half Marathon went very well, we all crossed the finish line in under 3 hours. The weather was fantastic and having friends and family with us made the event a wonderful experience. I felt a mixture of emotions whilst running, I’d never experienced before. A little bizarre, it gave me a lot of time to think through many conundrums, most of which came back to why we were there. It was a startling reminder of just how many other peoples life’s are affected by illnesses. Yet you could see the sheer determination shine through all of them.

Sponsorship so far…

Fundraising currently stands at £5432 excluding any gift aid with sponsor forms still to be returned.

Check out the Just Giving page for more details on current sponsors. http://www.justgiving.com/rudhamrun2013

Running Vest Logo Competition

Prior to the children’s summer half term break, I invited the Normans Primary School in Northwold to take part in designing a logo for our running vests. The winner of the chosen logoRudham Runners
was picked before the children went on their summer break to give us enough time to have the vests printed before the Half Marathon. Presentation took place on Friday 4th October at 3PM. The winner was Toby Rickard 7 Years old from Northwold. (logo top right of page)

The prize for the winner of the logo competition is as follows:

• Complimentary tickets to visit Church Farm at Stowbardolph, Downham Market. (2 Adults & 2 Children) These tickets were half sponsored by the Church Farm at Stowbardolph.
• 1 Junior size T Shirt with the logo printed (Mini version of the running vests).

We would like to say a huge thank you to everyone who helped support us over the last few months, training has been hard and not always at convenient at times, but at least we all completed the course, despite several injuries. Overall the day was a great success.

MRI For Iron: What to Expect

Thanks to advances in technology, more and more people with thalassemia are able to utilize MRI (magnetic resonance imaging) to get an assessment of whether iron is affecting their livers or hearts. In order to help patients prepare for these MRI-based tests, CAF, as part of a collaborative agreement with the Centers for Disease Control and Prevention, has created a new publication, “What to Expect When You Go for a MRI for Heart or Liver Iron.”

http://www.thalassemia.org/mri-for-iron-what-to-expect/

A Letter to Patients With Chronic Disease

From the eyes of Dr Rob.

http://more-distractible.org/2010/07/14/a-letter-to-patients-with-chronic-disease/

Study for Transfusionally Iron Overloaded Children, Adolescents and Adults Using FBS0701 is estimated to be complete by November 2018

To evaluate SSP-004184AQ in patients with transfusional iron overload.

SSP-004184AQ is a safe, tolerable, and effective orally available iron chelator, when administered chronically daily to patients with transfusional iron overload.

http://clinicaltrials.gov/ct2/show/study/NCT01671111